What Is the Distinctiveness of Paediatric Chaplaincy? Findings from a Systematic Review of the Literature
Issue: Vol 5 No. 1 (2017)
Journal: Health and Social Care Chaplaincy
Subject Areas: Healthcare Communication
DOI: 10.1558/hscc.31816
Abstract:
A systematic review of the literature was undertaken to identify the distinctiveness of paediatric chaplaincy. Four representative databases were searched using key words and Boolean searches: Proquest Nursing and Allied Health Source, Psychinfo, Cumulative Index of Allied Health Literature (CINAHL) and American Theological Library Association (ATLA). Inclusion and exclusion criteria were applied to identify pertinent literature. The search resulted in the identification of 96 items. These were retrieved and reviewed. A narrative approach to thematic analysis was adopted. This lead to the creation of four broad themes; relating to and supporting families including those receiving palliative, end of life and bereavement care; supporting children including spiritual and religious care; working as a part of multidisciplinary/ professional team; staff support and self-care. The findings suggest there is a notable lack of research undertaken by paediatric chaplains. Suggestions for education, practice and further research are offered.
Author: Paul Nash, Wilfred McSherry
References :
Boland, A., M. G. Cherry and R. Dickson (2014) Doing a Systematic Review. London: SAGE Publications.
Booth, A., D., Papaioannou and A. Sutton (2012) Systematic Approaches to Successful Literature Reviews. London: SAGE Publications.
Bull, A., and M. Gillies (2007) “Spiritual Needs of Children with Complex Healthcare Needs in Hospital”. Paediatric Nursing (November) 19(9): 34–38. https://doi.org/10.7748/paed.19.9.34.s24
Bull, A. W. (2013) “The Insights Gained from a Portfolio of Spiritual Assessment Tools Used with Hospitalised School Aged Children to Facilitate the Delivery of Spiritual Care Offered by the Healthcare Chaplain”. Unpublished PhD dissertation, University of Glasgow, UK.
Burleigh, B. (2011) “Sheffield Children’s NHS Foundation Trust”. In Being a Chaplain, ed. M. Threlfall-Holmes and M. Newittt, 47–49. London: SPCK.
Cadge, W. (2013) Paging God. Chicago, IL: University of Chicago Press.
Cadge, W., K. Calle and J. Dillinger (2011) “What Do Chaplains Contribute to Large Academic Hospitals? The Perspectives of Pediatric Physicians and Chaplains”. Journal of Religion and Health 50(2): 300–12.
Cater, D. G. (1963) “Some Observations Concerning Religious Ministry to Institutionalized Physically Handicapped Children”. Journal of Pastoral Care 17(2): 85–92. https://doi.org/10.1007/s10943-011-9474-8
Cronin, P., F. Ryan, A. Charlescraft, A. Tartaglia, D. Dodd-McCue and S. B. Barker (2010) “When Caring Hurts: a Pilot Study Supporting Compassion Fatigued Pediatric Critical Care Nurses”. Chaplaincy Today 26(2): 16–25. https://doi.org/10.1080/10999183.2010.10767408
Cobb, M. (2009) The Hospital Chaplains Handbook. Norwich: Canterbury Press.
Coughlan, M. (2008) “Undertaking a Literature Review: a Step-by-step Approach”. British Journal of Nursing 17(1): 38–43.
Darby, K., P. Nash and S. Nash (2014) “Understanding and Responding to Spiritual and Religious Needs of Young People with Cancer”. Cancer Nursing Practice 13(2): 32–37. https://doi.org/10.7748/cnp2014.03.13.2.32.e1059
de Boer, J. C., G. van Blijderveen, G. van Dijk, H. J. Duivenvoorden and M. Williams (2012) “Implementing Structured, Multiprofessional Medical Ethical Decision-making in a Neonatal Intensive Care Unit”. Journal of Medical Ethics 38(10): 596–601. https://doi.org/10.1136/medethics-2011-100250
Department of Health (2003) NHS Confidentiality: Code of Practice. London: Department of Health.
Desai, P. P., J. B. Ng and S. G. Bryant (2002) “Care of Children and Families in the CICU: A Focus on Their Developmental, Psychosocial, and Spiritual Needs”. Critical Care Nursing Quarterly 25(3): 88–97. https://doi.org/10.1097/00002727-200211000-00011
Eichmann, M. E. (2000) “The Neonatal Infant as Parishioner The Impact upon Mothers of Pastoral Care Extended to Their Neonatal Infants”. Chaplaincy Today 16(1): 23–32. https://doi.org/10.1080/10999183.2000.10767134
Evans, D. (2003) “Hierarchy of Evidence: a Framework for Ranking Evidence Evaluating Healthcare Interventions”. Journal of Clinical Nursing 2(1): 77–84. https://doi.org/10.1046/j.1365-2702.2003.00662.x
Feudtner, C., J. Haney and M. A. Dimmers (2003) “Spiritual Care Needs of Hospitalized Children and Their Families: A National Survey of Pastoral Care Providers’ Perceptions”. Pediatrics 111(1): 67–72. https://doi.org/10.1542/peds.111.1.e67
Fosarelli, P. (2003) Whatever You Do For the Least of These. Liguori: Liguori Publications.
Freyer, D. R., A. Kuperberg, D. J. Sterken, S. L. Pastyrnak, D. Hudson and T. Richards (2006) “Multidisciplinary Care of the Dying Adolescent”. Child and Adolescent Psychiatric Clinics of North America 15(3): 693–715. https://doi.org/10.1016/j.chc.2006.02.003
Grossoehme, D. H. (1996) “Prayer Reveals Belief: Images of God from Hospital Prayers”. Journal of Pastoral Care 50(1): 33–39. https://doi.org/10.1177/002234099605000104
—(1999) The Pastoral Care of Children. Binghamton: Haworth Press.
—(2007b) “Pediatricians Characteristics Associated With Attention to Spirituality and Religion in Clinical Practice”. Pediatrics 119(1): 117–23. https://doi.org/10.1542/peds.2006-0642
—(2008a) “Development of a Spiritual Screening Tool for Children and Adolescents”. The Journal of Pastoral Care & Counseling 62(1–2): 71–85. https://doi.org/10.1177/154230500806200108
Grossoehme, D. H., S. Cotton and A. Leonard (2007a) “Spiritual and Religious Experiences of Adolescent Psychiatric Inpatients versus Healthy Peers”. The Journal of Pastoral Care & Counseling 61(3): 197–204. https://doi.org/10.1177/154230500706100304
Grossoehme, D. H., R. VanDyke and M. Seid (2008b) “Spirituality’s Role in Chronic Disease Self-management: Sanctification of the Body in Families Dealing with Cystic Fibrosis”. Journal of Health Care Chaplaincy 15(2): 149–58. https://doi.org/10.1080/08854720903163312
Grossoehme, D. H., J. Ragsdale, J. L. Wooldridge, S. Cotton and M. Seid (2010a) “We Can Handle This: Parents’ Use of Religion in the First Year Following their Child’s Diagnosis with Cystic Fibrosis”. Journal of Health Care Chaplaincy 16(3-4): 95–108. https://doi.org/10.1080/08854726.2010.480833
Grossoehme, D. H., J. Ragsdale, S. Cotton, J. L. Wooldridge, L. Grimes and M. Seid (2010b) “Parents’ Religious Coping Styles in the First Year after Their Child’s Cystic Fibrosis Diagnosis”. Journal of Health Care Chaplaincy 16(3-4): 109–122. https://doi.org/10.1080/08854726.2010.480836
Grossoehme, D. H., S. Cotton, J. Ragsdale, A. L. Quittner, G. McPhail and M. Seid (2013a) “‘I Honestly Believe God Keeps Me Healthy so I Can take Care of My Child’: Parental Use of Faith Related to Treatment Adherence”. Journal of Health Care Chaplaincy 19(2): 66–78. https://doi.org/10.1080/08854726.2013.779540
Grossoehme, D. H., S. Cotton and G. McPhail (2013b) “Use and Sanctification of Complementary and Alternative Medicine by Parents of Children with Cystic Fibrosis”. Journal of Health Care Chaplaincy 19(1): 22–32. https://doi.org/10.1080/08854726.2013.761007
Grossoehme, D. H., R. Szczesniak, G. L. McPhail and M. Seid (2013c) “Is Adolescents’ Religious Coping with Cystic Fibrosis Associated with the Rate of Decline in Pulmonary Function? – A Preliminary Study”. Journal of Health Care Chaplaincy 19(1): 33–42. https://doi.org/10.1080/08854726.2013.767083
Hart, C. W., and S. Matorin (1997) “Collaboration between Hospital Social Work and Pastoral Care to Help Families Cope with Serious Illness and Grief”. Psychiatric Services (Washington, D.C.) 48(12): 1549–552. https://doi.org/10.1176/ps.48.12.1549
Herrmann, N. (1992) “No Better or Wiser, Just Braver and Sicker”. Journal of the American Medical Association 268(15): 2102. https://doi.org/10.1001/jama.1992.03490150156043
Hesch, J. (1987) Clinical Pastoral Care for Hospitalized Children and their Families. New York: Paulist Press.
Hinds, P. S., L. Oakes, W. Furman, P. Foppiano, M. S. Olson, A. Quargnenti and C. Strong (1997) “Decision Making by Parents and Healthcare Professionals When Considering Continued Care for Pediatric Patients with Cancer”. Oncology Nursing Forum 24(9): 1523–528.
Ingham-Broomfield, R. B. (2016) “A Nurses’ Guide to the Hierarchy of Research Designs and Evidence”. Australian Journal of Advanced Nursing 33(3): 38–43.
Lamiani, G., E. C. Meyer, D. M. Browning, D. Brodsky and I. D. Todres (2009) “Analysis of Enacted Difficult Conversations in Neonatal Intensive Care”. Journal of Perinatology 29(4): 310–16. https://doi.org/10.1038/jp.2008.228
Lotz, J. D., R. J. Jox, G. D. Borasio and M. Führer (2013). “Pediatric Advance Care Planning: A Systematic Review”. Pediatrics 131(3): 873–80. https://doi.org/10.1542/peds.2012-2394
Lyndes, K. A., G. Fitchett, N. Berlinger, W. Cadge, J., Misasi and E. Flanagan (2012) “A Survey of Chaplains’ Roles in Pediatric Palliative Care: Integral Members of the Team”. Journal of Health Care Chaplaincy 18(1-2): 74–93. https://doi.org/10.1080/08854726.2012.667332
Massey, K., M. J. Barnes, D. Villines, J. D. Goldstein, A. L. Pierson, C. Scherer, B. V. Laan and W. T. Summerfelt (2015) “What Do I Do? Developing a Taxonomy of Chaplaincy Activities and Interventions for Spiritual Care in Intensive Care Unit Palliative Care”. BMC Palliative Care 14(1): 10–17. https://doi.org/10.1186/s12904-015-0008-0
Meeks, R. (2009). “Parental Presence in Pediatric Trauma Resuscitation: One Hospital’s Experience”. Pediatric Nursing 35(6): 376–80.
Meert, K. L., S. H. Briller, S. M. Schim, C. Thurston and A. Kabel (2009) “Examining the Needs of Bereaved Parents in the Pediatric Intensive Care Unit: A Qualitative Study”. Death Studies 33(8): 712–40. https://doi.org/10.1080/07481180903070434
Ministries Team (2013) Called to Be a Youth Specialist. Didcot: Baptist Union. http://www.baptist.org.uk/Articles/368855/Called_to_be.aspx
Nash, P., K. Darby and S. Nash (2013) “The Spiritual Care of Sick Children: Reflections From a Pilot Participation Project”. International Journal of Children’s Spirituality 18(2): 148–61. https://doi.org/10.1080/1364436X.2012.752345
—(2015a) Spiritual Care with Sick Children and Young People. London: Jessica Kingsley.
Nash, P., S. Nash and C. Frith (2011) Perspectives on Spirituality and Sick Children and Young People in a Multicultural Paediatric Hospital Context – Identifying and Responding to Spiritual Needs. http://www.inter-disciplinary.net/wp-content/uploads/2011/02/nashspaper.pdf
Nash, P., M. Parkes and Z. Hussain (2015b) Multifaith Care for Sick and Dying Children and Their Families. London: Jessica Kingsley. https://doi.org/10.17226/21754
NHS Education for Scotland (2009) Spiritual Care Matters: an Introductory Resource for All NHS Scotland Staff. Edinburgh: NES.
National Institute for Clinical Excellence (2006) Standards for Development of Clinical Guidelines and Implementation in Paediatrics and Child Health. London: National Institute for Clinical Excellence.
O’Connell, D. (2013) Working with Children and Young People: Good Practice Guidelines for Healthcare Chaplains. Birmingham: Red Balloon Resources.
Oxford English Dictionary. “distinctiveness”. https://tinyurl.com/ksvz2ko
Popay, J., H. Roberts, A. Sowden, M. Petticrew, L. Arai, M. Rodgers, N. Britten, K. Roen and S. Duffy (2006) Guidance on the Conduct of Narrative Synthesis in Systematic Reviews. A Product from the ESRC Methods Programme. Lancaster: Lancaster University.
Powers, K. S., B. Goldstein, C. Merriam, M. Chiafery, L. Tornabene and S. Paprocki (1994) “A Multidisciplinary Approach to Families of Brain Dead Children: Clinical Intensive Care”. International Journal of Critical & Coronary Care Medicine 5(4): 191–96.
Robinson, M. R., M. M. Thiel, M. M. Backus and E. C. Meyer (2006) “Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit”. Pediatrics 118(3): 719–29. https://doi.org/10.1542/peds.2005-2298
Rudd, R. A., and L. M. D’Andrea (2013) “Professional Support Requirements and Grief Interventions for Parents Bereaved By an Unexplained Death at Different Time Periods in the Grief Process”. International Journal of Emergency Mental Health 15(1): 51–68.
Schooley, C. C. (1974) “Communicating with Hospitalized Children: The Mutual Storytelling Technique”. Journal of Pastoral Care 28(2): 102–11. https://doi.org/10.1177/002234097402800206
Schneider, M. A., and R. C. Mannell (2006) “Beacon in the Storm: An Exploration of the Spirituality and Faith of Parents whose Children have Cancer”. Issues in Comprehensive Pediatric Nursing 29(1): 3–24. https://doi.org/10.1080/01460860500523731
Seltz, L. B., L. Zimmer, L. Ochoa-Nunez, M. Rustici, L. Bryant and D. Fox (2011) “Latino Families’ Experiences with Family-centered Rounds at an Academic Children’s Hospital”. Academic Pediatrics 11(5): 432–38. https://doi.org/10.1016/j.acap.2011.06.002
Shelly, J. A. (1982) The Spiritual Needs of Children. Downers Grove, IL: IVP.
Smith, J., and W. McSherry (2004) “Spirituality and Child Development: A Concept Analysis”. Journal of Advanced Nursing 45(3): 307–15. https://doi.org/10.1046/j.1365-2648.2003.02891.x
Snodgrass, J. L. (2012) “A Psychospiritual, Family-centered Theory of Care for Mothers in the NICU”. The Journal of Pastoral Care & Counseling 66(1): 1–11. https://doi.org/10.1177/154230501206600102
Sommer, D. R. (2012) “Pediatric Chaplaincy”. In Professional, Spiritual and Pastoral Care A Practical Clergy and Chaplain’s Handbook, ed. S. B. Roberts, 358–82. Woodstock, VT: Skylight Paths.
Speck, P. W. (1988) Being There: Pastoral Care in Time of Illness. London: SPCK.
Swift, C. (2014) Hospital Chaplaincy in the Twenty-first Century. Farnham: Ashgate.
UKBHC (2012) Code of Conduct for Healthcare Chaplains. London: UKBHC.
Weinstein, L. (2001) “Playing Well with Others: the Discipline in a Pediatric Hospital”. Journal of Health Care Chaplaincy 11(1): 129–32. https://doi.org/10.1300/J080v11n01_06