References :

Angouri, J. (2012) ‘The older I get the less I trust people’: Constructing age identities in the workplace. Pragmatics 22 (2): 255–277.
Angouri, A. and Sanderson, T. (in preparation) Defining community to newly diagnosed posters in an online Rheumatoid Arthritis (RA) forum.
Arnett, F. C., Edworthy, S. M., Bloch, D. A., McShane, D. J. F., Fries, J. F., Cooper, N. S., Healey, L. A., Kaplan, S. R., Liang, M. H., Luthra, H. S., Medsger, T. A. Jr, Mitchell, D. M., Neustadt, D. H., Pinals, R. S., Schaller, J. G., Sharp, J. T., Wilder, R. L. and Hunder, G. (1988) The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis & Rheumatism 31 (3): 315–324. http://dx.doi.org/10.1002/art.1780310302
Charmaz, K. (1987) Struggling for a self: Identity levels of the chronically ill. In J. Roth and P. Conrad (eds) Research in the Sociology of Health Care: A Research Manual, Volume 6, 283–321. Greenwich, CT: JAI Press.
Christensen, A., Howren, B., Hillis, S., Kaoboli, P., Carter, B., Cvengros, J., Wallston, K. and Rosenthal, G. (2009) Patient and physician beliefs about control over health: Association of symmetrical beliefs with medication regimen adherence. Journal of General Internal Medicine 25 (5): 397–402. http://dx.doi.org/10.1007/s11606-010-1249-5
Cicourel, A. V. (1999) The interaction of cognitive and cultural models in health care delivery. In S. Sarangi and C. Roberts (eds) Talk, Work, and Institutional Order: Discourse in Medical, Mediation and Management Settings, 183–224. Berlin: Mouton de Gruyter.
Civan, A. and Pratt, W. (2007) Information systems and healthcare XXII: Characterising and visualizing the quality of health information. Communications of the Association for Information Systems 20: 226–259.
Cooley, C. (1902). Human Nature and the Social Order. New York: Schocken.
Connor U., Anton, M., Goering, E., Lauten, K., Hayat, A., Roach, P. and Balunda, S. (2012) Listening to patients’ voices: Linguistic indicators related to diabetes self-management. Communication & Medicine 9 (1): 1–12.
Eaton, S., Collins, A., Coulter, A., Elwyn, G., Grazin, N. and Roberts, S. (2012) Editorial: Putting patients first: NICE guidance on the patient experience is a welcome small step on a long journey. British Medical Journal 344: e2006.
Edley, N. and Litosseliti, L. (2010) Contemplating interviews and focus groups. In L. Litosseliti (ed.) Research Methods in Linguistics, 155–179. London: Continuum.
Elwyn, G., Coulter, A., Laitner, S., Walker, E., Watson, P. and Thomson, R. (2010) Implementing shared decision making in the NHS. British Medical Journal 341: c5146. http://dx.doi.org/10.1136/bmj.c5146
Gaston, C. M. and Mitchell, G. (2005) Information giving and decision-making in patients with advanced cancer: A systematic review. Social Science & Medicine 61 (10): 2252–2264. http://dx.doi.org/10.1016/j.socscimed.2005.04.015
Giles, H. and Coupland, N. (1991) Language: Contexts and Consequences. Milton Keynes: Open University Press.
Green, G. (2009) The End of Stigma? London: Routledge.
Hardey, M. (1999) Doctor in the house: The Internet as a source of lay health knowledge and the challenge to expertise. Sociology of Health & Illness 21 (6): 820–835. http://dx.doi.org/10.1111/1467-9566.00185
Hartzler, A. and Pratt, W. (2011) Managing the personal side of health: How patient expertise differs from the expertise of clinicians. Journal of Medical Internet Research 13 (3): 62–74. http://dx.doi.org/10.2196/jmir.1728
Haug, M. R. and Sussman, M. B. (1969) Professional autonomy and the revolt of the client. Social Problems 17: 153–161. http://dx.doi.org/10.2307/799862
Kirwan, J., Newman, S., Tugwell, P. and Wells, G. (2009) Patient perspective on outcomes in rheumatology – A position paper for OMERACT 9. Journal of Rheumatology 36 (9): 2067–2070. http://dx.doi.org/10.3899/jrheum.090359
Kraetschmer, N., Sharpe, N., Urowitz, S. and Deber, R. B. (2004) How does trust affect patient preferences for participation in decision-making? Health Expectations 7 (4): 317–326. http://dx.doi.org/10.1111/j.1369-7625.2004.00296.x
Lorig, K., Ritter, P., Stewart, A. L., Sobel, D. S., Brown, B. W. Jr, Bandura, A., Gonzalez, V. M., Laurent, D. D. and Holman, H. R. (2001) Chronic disease self-management program: 2-year health status and health utilization outcomes. Medical Care 39: 1217–1223. http://dx.doi.org/10.1097/00005650-200111000-00008
Mead, G. H. (1934) Mind, Self and Society. Chicago: University of Chicago Press.
NHS Choices (2010) The Expert Patients Programme - What is an expert patient? Retrieved October 2011 from http://www.nhs.uk/Conditions/Expert-patients-programme-/Pages/Whatisanexpertpatient.aspx
Nordby, H. (2008) Medical explanations and lay conceptions of disease and illness in doctor–patient interaction. Theoretical Medicine and Bioethics 29: 357–370. http://dx.doi.org/10.1007/s11017-008-9080-2
Parsons, T. (1951) Social Systems. Glencoe, IL: Free Press.
Patel, V. L., Arocha J. F. and Kaufman D. R. (1999) Expertise and tacit knowledge in medicine. In R. J. Steinberg and J. Horvath (eds) Tacit Knowledge in Professional Practice, 75–99. Mahwah, NJ: Lawrence Erlbaum Associates.
Petersen A. (2006) The best experts: The narratives of those who have a genetic condition. Social Science & Medicine 63 (1): 32–42. http://dx.doi.org/10.1016/j.socscimed.2005.11.068
Prior, L. (2003) Belief, knowledge and expertise: The emergence of the lay expert in medical sociology. Sociology of Health & Illness 25: 41–57. http://dx.doi.org/10.1111/1467-9566.00339
Putman, H. (1975) The meaning of ‘meaning’. Language, Mind and Knowledge: Minnesota Studies in the Philosophy of Science 7: 131–193.
Ritchie, J. and Lewis, J. (eds) (2003) Qualitative Research Practice: A Guide for Social Science Students and Researchers. London: Sage.
Rise, M. B., Solbjør, M., Lara, M. C., Westerlund, H., Grimstad, H. and Steinsbekk, A. (2011) Same description, different values. How service users and providers define patient and public involvement in health care. Health Expectations 16 (3): 266–276. http://dx.doi.org/10.1111/j.1369-7625.2011.00713.x
Ryan, S. (1996) Living with rheumatoid arthritis: A phenomenological exploration. Nursing Standard 10 (41): 45–48.
Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2011) Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health & Illness 33 (4): 618–633. http://dx.doi.org/10.1111/j.1467-9566.2010.01305.x
Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2010) What outcomes from pharmacological treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis Care & Research 62 (5): 640–646. http://dx.doi.org/10.1002/acr.20034
Sarangi, S. (2001) Editorial: On demarcating the space between ‘lay expertise’ and ‘expert laity’. Text 21 (1/2): 3–11.
Sarangi, S. (2010) Healthcare interaction as an expert communicative system. In J. Streeck (ed.) New Adventures in Language and Interaction, 167–199. Amsterdam: John Benjamins.
Sarangi, S. and Clarke, A. (2002) Zones of expertise and the management of uncertainty in genetics risk communication. Research on Language Social Interaction 35: 139–171. http://dx.doi.org/10.1207/S15327973RLSI3502_2
Schneider, A., Körner, T., Mehring, M., Wensing, M., Elwyn, G. and Szecsenyi, J. (2006) Impact of age, health locus of control and psychological co-morbidity on patients’ preferences for shared decision making in general practice. Patient Education and Counseling 61 (2): 292–298. http://dx.doi.org/10.1016/j.pec.2005.04.008
Schwartz, S. J., Beyers, W., Luyckx, K., Soenens, B., Zamboanga, B. L., Forthun, L. F., Hardy, S. A., Vazsonyi, A. T., Ham, L. S., Kim, S. Y., Whitbourne, S. K. and Waterman, A. S. (2011) Examining the light and dark sides of emerging adults’ identity: A study of identity status differences in positive and negative psychosocial functioning. Journal of Youth and Adolescence 40 (7): 839–859. http://dx.doi.org/10.1007/s10964-010-9606-6
Sinding, C., Hudak, P., Wiernikowski, J., Aronson, J., Miller, P., Gould, J. and Fitzpatrick-Lewis, D. (2010) ‘I like to be an informed person but…’: Negotiating responsibility for treatment decisions in cancer care. Social Science & Medicine 71: 1094–1101. http://dx.doi.org/10.1016/j.socscimed.2010.06.005
Stryker, S. (2000) Identity competition: Key to differential social movement involvement. In S. Stryker, T. Owens and R. White (eds) Identity, Self and Social Movements, 21–40. Minneapolis: University of Minnesota Press.
Tajfel, H. and Turner, J. C. (1979) An integrative theory of intergroup conflict. In W. G. Austin and S. Worchel (eds) The Social Psychology of Intergroup Relations, 33–47. Monterey, CA: Brooks/Cole.
Thorne, S. E., Ternulf Nyhlin, K. and Paterson, B. L. (2000) Attitudes toward patient expertise in chronic illness. International Journal of Nursing Studies 37: 303–311. http://dx.doi.org/10.1016/S0020-7489(00)00007-9
Tritter, J. Q. (2011) Public and patient participation in health care and health policy in the United Kingdom. Health Expectations 14: 220–223. http://dx.doi.org/10.1111/j.1369-7625.2011.00697.x
Turner, B. S. (1995) Medical Power and Social Knowledge. London: Sage.
Wolfe, F. and Cathey, M. (1991) The assessment and prediction of functional disability in rheumatoid arthritis. Journal of Rheumatology 18: 1298–1306.
Yang, L. H., Kleinman, A., Link, B. G., Phelan, J. C., Lee, S. and Good, B. (2007) Culture and stigma: Adding moral experience to stigma theory. Social Science & Medicine 64: 1524–1535. http://dx.doi.org/10.1016/j.socscimed.2006.11.013
Zahavi, D. (2009) Is the self a social construct? Inquiry 52 (6): 551–573. http://dx.doi.org/10.1080/00201740903377826
Ziebland, S. (2004) The importance of being expert: The quest for cancer information on the internet. Social Science & Medicine 59: 1783–1793. http://dx.doi.org/10.1016/j.socscimed.2004.02.019